SYNOPSIS
Seventeen-year-old Jonathan Gionfriddo was born with the life-threatening disease Epidermolysis Bullosa, or EB. Most people who have Jon's type of EB will die by the age of thirty as sufferers are prone to infections and skin cancers.
Seventeen-year-old Jonathan Gionfriddo was born with the life-threatening disease Epidermolysis Bullosa, or EB. Most people who have Jon's type of EB will die by the age of thirty as sufferers are prone to infections and skin cancers.
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